Planning for the big day
In 4 months Aidan will be turning 5 and Anthony and I are busy making plans. We’re asking ourselves all the usual questions… How many guests? Venue – where and how big? Self-catered or hire a caterer?...
View ArticleTop 10 things never to say to a parent of a terminally ill child.
Most successful blog posts seem to start with a top 5 or top 10 list…. Five ways to sell your home sooner, Ten best dating tips, Five must have fashion items, etc, etc Well here is mine… ten things...
View ArticleAccepting the inevitable
‘Accepting’ Aidan’s death is two-fold for me. First, there’s an intellectual acceptance and then there’s an emotional acceptance. For a while, after the shock of the initial diagnosis, I had moments of...
View ArticleWhatever you do, don’t use the ‘D’ word – terminology of dying.
Did you know there are over 200 euphemisms for death in the English language? Whenever we go out it is inevitable that some stranger will approach us and ask, “what’s wrong with him?” Talking about how...
View ArticleFeeling the sorrow across the miles
It was during lunchtime at work, sitting alone in the tea room that I decided to quickly check Facebook on my phone. It was then that it happened. Whack! Like someone hitting me in the stomach. My...
View ArticleIf I had the choice?
There’s a quote that did the rounds on Facebook recently for parents who have lost a child – it simply says “I would still choose you” and it got me thinking. Would I still choose Aidan if I had the...
View ArticleUnexpected friends
Anthony and I attended a fundraiser on Friday night for the ward where Aidan receives his weekly platelet transfusions. It was a fun night filled with plenty of laughter and it made me realise just how...
View ArticleIs it exploitation?
I was approached last week by Aidan’s palliative care team to see if we would be interested in talking to the producer of a news program about our story. As always, when asked if we would be willing to...
View ArticleLetting go of the life raft
Yesterday I received the news that Aidan’s primary doctor is going on leave to travel around Australia for a year or longer. It was something she had mentioned last year but I told myself not to worry...
View Article5 reasons why stories of ‘miracles’ suck
Scanning the internet this week it’s been hard to avoid the story of Brittany Maynard who chose to take her own life rather than wait for her terminal brain cancer to take it for her. It’s an issue...
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